Monday, March 27, 2017

HOME!!

Walking out of that hospital with Sara never felt so good. OSF has Valet parking, which is wonderful to use. Yes, you can park your own car, but when you have a baby and other things, plus everything you collect in the hospital, it's nice to have someone just pull the car up for you.

On our way home we had to stop and fill all Sara's prescriptions. Two types of insulin, syringes, ketone strips, test strips, and Glucagon. While were waiting at Walgreens, I sat and nursed Selah, while Daniel ran Sara home. Thankfully home isn't far away, as Selah had a huge blowout diaper. So around her turned to get her a new outfit and blanket. That was just the beginning of a rough evening.

Once we got home, it was getting close to dinner time. So we counted the carbs and got the supplies ready. It was like taking care of a newborn as first time parents. You are awkward, wondering if you are remembering how to do everything the way it is supposed to be done. We opened up the insulin and it didn't look correct. They had given us pen cartridges instead of vials and we didn't have a pen! Could we use a syringe on the cartridge? Then her glucose monitor said "HI". Try another one. That said "HI" too. So we made our first call to the doctor. An hour later, with a starving child and parents, we finally were able to sit down and eat. Then it was time to check ketones. They were large again. So another call to the doctor who had us gave us more instructions. Bedtime finally came and we all collapsed.

The next couple of days were all a blur of learning how to get the timing of meal prep with carb counting and then giving the insulin doing. We made it through with lots of tears, hugs, and by the grace of God.

On Sunday, Sara and Daniel stayed home from church. It felt good to do something normal. Everyone had lots of questions. My logical, non-emotional side kicked in and the technical just started flowing. Most people are familiar with Type 2 Diabetes and Type 1 is so different. I'll save that information for another post.

When I got back home, I was exhausted and Sara had her first big emotional meltdown. Her and I just had tears running down our faces. Was she ever going to be normal? Why did this happen? question after question came out. It was good for both of us to talk through everything. One thing that has been very important for Daniel and I is to keep reaffirming to her that God knew all this was going to happen before she was even created. Psalm 139 reminds us that we are fearfully and wonderfully made. God didn't make a mistake when he created her or allowed this disease to happen. We don't now why, but we do know it is for our good. Our faith sure has grown since this diagnosis.

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