Wednesday, June 28, 2017

We Are D mamas

(Reprinted with permission)

We are the D Mothers
We are called D Moms. D Mamas. Even Type 3's.

Sometimes we get a bad rap. 

~We're too "intense."
~We worry too much.
~We are overbearing.

~We over think. 
~We over react. 
~We over manage.

And I only have one thing to say about all of that... You are probably right.

I want to tell you that if you are a parent, you can understand, but that is not true.

I want to tell you that if you have diabetes yourself, you can understand, but that is not true either...just as I will never fully understand your diabetic life, you will never fully understand mine.

The only way you would understand what goes on in the swelly brain of a D Mama, is if you were a D Mama yourself.

We are special. Chosen for our story, as you were chosen for yours.


We are fighters, and we will fight until our last breath to keep our children safe.

New technologies like fast acting insulin and insulin pumps provide keys for better management, but they also provide a clear and present danger at all times.

We have to be vigilant.

We look into the eyes of our children and we love them with a bright tenderness. We want more than anything for them to live a life free from restrictions, free from prejudice, free from complications, free from emergency rooms and hospitals.

We feel a responsibility well beyond any bounds of normalcy. We do not want to live a life of regrets. One day we will need to look into the eyes of our adult Type 1 Children and we want more than anything to say...
"I did my best."


The mothers of Type 1's spend every day racked with guilt. Every blood sugar number pierces our heart. We feel responsible for every high and every low.

An argument can be made that diabetes is responsible for every one of those numbers, but in our eyes...whether a reasonable notion or not, we feel they are a reflection of our efforts.


We may not always admit it to you, or to ourselves...but we take those numbers personally.

The A1C isn't called the mommy report card for nothing.

We do not sleep. That is a choice. We choose to keep a close eye on the numbers while the world takes a break. We don't take breaks. We know that waking up with a off number can domino to the rest of the day.

We know that pancreases sputter.

We know the soccer game from 5 hours earlier can affect the nighttime numbers. (Yet we urge them to play.)

We know that Pizza can wreak havoc hours after consumption, and we know that Chinese food for dinner means a sleepless night for us.
(Yet we delight in serving them their favorites anyway.)


We know that diabetes never sleeps. That is why we don't either. We know that a 200 can turn into a 52 in 30 minutes flat.

We know that on field trip days our children may spike with excitement, or bottom out from activity.

We know nothing is for sure.

So we check, and constantly ask our children how they are feeling...and we hover...watching every move...looking for changes in our children's faces...changes in their gait...tiny beads of sweat on the back of their necks...we know the signs of lows. We know our children better than anyone else.

We love hard. We try hard.

We cry hard.
We hug hard.
We hope hard.
We stress hard.
We are hard on ourselves. 

We are D mamas.

Don't judge us because we fret over the details. To us...Our Diabetic Life is all about the details.

We are 100% responsible for the well being of children we love more than anything on this blessed green earth.

No, we will not back off.
No, we will not calm down.
No, we will not stop making noise.


As mothers, we know that our children are special. Diabetes makes them stronger. It makes them resilient, responsible, amazing. It gives them a sense of humor. It makes them grow up too fast, and let's them spread their wings too slow.

We wish we could take away the pain. We wish it were us.


We are warriors.


We are D Moms.

Hear. Us. Roar. 

4 months

It has been a while since I have last posted. Last time I checked in, we were 6 weeks post diagnosis and had just gotten her CGM (Dexcom). Today it is 4 months since diagnosis. It's hard to believe. It feels like a lifetime ago since she was so sick. Sara and I were talking about that day and there isn't much that she really remembers. She know she was very sick, but for the first couple of days she was so out of it. Visitors came, but she doesn't really remember. It breaks my heart, but yet I am glad the memories of being so sick are deep inside.  Someday they may surface and we will walk through the emotions they will bring.

Today, Sara is doing great. Her Dexcom has been an amazing too to have.  We have been able to see her trends and treat highs and lows more efficiently than if we had to do multiple finger sticks. She doesn't seem to mind wearing it either.  The FDA recommendation is changing it every 7 days.  There is a "hack" that allows us to stop the sensor and then reset it every 7 days until it no longer read accurately. Currently we are on day 23 of her current sensor.  As long as she stays hydrated, it is still reading very accurate.  Technology is so amazing.

Something that has been on my mind a lot lately are numbers.  In a normal household, you think of numbers in regards to budget and the cost of things.  We think a lot about those numbers, but now we also see numbers everywhere else.  Numbers are the carbs in our food, our exercise, waking in the morning, bed time, and 2 am.   It doesn't matter where we go, the numbers are there. Swimming lessons, church, library, park, and friends' houses. Sometimes those numbers are high or low and make us do more math in calculating carbs or insulin doses. Sometimes those numbers are in range and we breathe a bit easier for a short time. Those numbers also show themselves in terms of waiting. Wait X minutes after insulin to eat, or wait X minutes to see if lows respond, before giving more carbs.

What's really hard about those numbers being everywhere is seeing that Sara is a person and that those numbers don't define her. It's so easy to get caught up in the highs and lows of the day, but that is not who she is. Sara is a lovely young lady who loves her family, loves God, and strives hard to be an obedient daughter, good friend and loving to those around her. She loves playing with her siblings, reading, playing the piano, writing and math. One of her favorite things to bake is brownies. Type 1 diabetes is just a part of her. It will teach her many lessons throughout the coming years, and make her grow up faster and probably stronger than her siblings, but it is not going to define who she is.


We Are D mamas

(Reprinted with permission) We are the D Mothers We are called D Moms. D Mamas. Even Type 3's. Sometime...